Wednesday, January 23, 2008

Just the facts, and then some!

Yesterday I had an afternoon appointment with my oncologist where we received a lot of information about my case. Bob and two of my daughters, Erin and Mackenzie, were able to come with me. Shannon had to stay home with her daughters, but offered to make us all dinner after the appointment since she couldn't come with us - good deal!

Here is what I learned from Dr. Segota:
The cancer has not metastasized to my brain, however, it is in my spine. It also appears to be in my adrenal gland, which is located next to the kidney. The biopsy of my lymph nodes showed that my right node above the collar bone contains cancer. Since my tumor is in the left lung, the fact that my right node is infected allows them to assume the left nodes would also be malignant.

Dr. Segota has ordered a biopsy of my adrenal gland to be 100% sure it is malignant. She stressed that it is very unlikely that they would find the adrenal gland to be cancer-free, but we would certainly rather be sure.

So here's the answer everyone has been waiting for. I have Stage 4 cancer, which clinically speaking, means it is inoperable and incurable. This, of course, does not limit God's ability to perform drastic miracles, and I will continue to do everything I can to promote my healing including continuing to pray for healing.

The adrenal biopsy will be next week, and they'll put my chemo port in the same day. Medical treatment will begin February 5, with my first round of chemotherapy. I will be taking two forms of chemo, Taxol and Carboplatin, as well as a newer drug called Avastin. Dr. Segota said about 50% of people in my position live under a year from the time of diagnosis and 50% live over a year. She has every reason to believe I'll be one of the longer living because of my good health otherwise, positive attitude, and youth (I'm a mere 29 years old, remember?).

Again, I want to stress that this is simply the medical information I got yesterday. God's plan for me may be 100 more years on earth enjoying my husband, kids, and grandkids.

In the meantime, I got my nails done, and I must say, they look fabulous! Plus, Suzi brought over some beautiful flowers in a pot we had painted together to brighten my kitchen. The tag on the pot included this encouraging verse: "An anxious heart weighs a man down, but a kind word brings healing. -Proverbs 12:25." I am so thankful for all your kind words in emails, cards, calls, visits, and comments on this blog - which I must say is one of my favorite forms of encouragement because they are a public forum, so they not only speak to me, but to the others who read my blog.

Some of you have told me you are technically challenged like I am. If you are having trouble leaving comments, hopefully these instructions will help. At the bottom of each blog entry, there is a link saying, "0 comments," or maybe, "62 comments" :). Click on that and type your comment in the box that appears. Then type in the verification code below the box. Here's what I think was confusing people, don't try to put a username and password. Just click where it says "nickname" and type in your name. Ignore where it says "URL," and post the comment! Easy as pie! Can't wait to hear from all of you!

I am so thrilled that my darling son Steve and his wife and daughter are coming to visit me next week. He's in the Navy and has been moving from base to base for the past 17 years, so each visit from him creates big excitement. But although my son has been far, he has been incredibly supportive of me. In fact, he offered to shave his head with me when I lose my hair. I said that wasn't such a sacrifice, but if he was willing to wear one of the embarrassing warming cancer hats, that would really be something! This is what resulted...

God bless!

7 comments:

Anonymous said...

I think I look great in this picture. Those things really do keep your head warm. Love you Mom.

Anonymous said...

Jayne,

Thanks for thinking of all of us: keeping us updated on how we can pray, sharing your story, your family and your photos. Those other photos you saw must not have been developed properly, because I thought you were 29. I just couldn't figure out how your kids could be so close to your age.

I will be praying for you and have passed your info and this site along to friends to pray as well.

Love,

Sandy Curran

Anonymous said...

Hi Jayne!!
I am emailing my aunt to try and get you names of some other doctor's in Florida for a second opinion. My 2nd cousin Joan passed from lung cancer and was put on an experimental drug that kept her alive and happy way past any doctor's diagnosis. My father went to Sloane Kettering Cancer Hospital in NYC to get second opnions as well as Mass General in Boston. Just some different options I thought I could suggest to you.
I pray for you everyday and know that you will be allright. Whatever happens - God really does have a plan. You are so blessed to be surronded by family and friends. Always remember that when you get down.
I promise to forward the information to Mackenzie the minute I get it from my Aunt.
I love you and think of you always,
Rachel

Anonymous said...

Jayne,

You look absolutely beautiful and radient, not a day older than 29:) It must be the "good hair and the nice turtle neck"!

I just want you to know you and your family are in my thoughts and prayers everyday! My mom gave your blog address to some of her friends in her prayer group, too. We all are amazed how God is working in your life. Your faith, courage and positive attitude is so inspirational to us all. You are so right, science has no say in your life it's God...and he is an amazing God!

Love,
Ragan

Anonymous said...

My dad sent me the link to the blog and I am so glad that he did. You were another mom to me growing up! Your courage, strength and spirit that shows through your posts truly inspires me. Know that you are in my thoughts and prayers!

By the way, you (and Steve for that matter) look the same as I remember you... you really do look great!

Keep up that incredible attitude and I know you will do great and beat all odds!

Love,
Christine (Mellen) Lang

Erin - When you get a minute, drop me an email. I tried emailing last week, but am not sure if I have the correct address anymore.
lang@hurricanesports.com

Anonymous said...

Hi Jayne,

Gee what is this all about? I'm sure you think that every day. And as the days go bye, The Dear Lord is giving you His hand to help you along the way. Wish we lived closer to be more helpful. I would like to call you, but I'm afraid I will disturb your rest. It takes me so long to type and to be computer friendly. I don't speek nice to my computer. And it knows it. Wish you could get away. We would love to laugh and talk about old times. Feb 29th is the big weekend at the Mellen B.and B. Prayers for you and your family.

Anonymous said...

Hi Jayne,
You are such an inspiration to all of us! You should be the poster girl for a Cancer Society campaign ... "NO Whining ... God is in this with me!"
I am right around the corner for you and anything the girls might need; Mackenzie has my number, just call!!! Your the BEST!
BIG hugs, Pam Farmer