Wednesday, October 21, 2009

For God So Loved the World

Hello all. It's just Mackenzie writing this time. My mom and I usually collaborate on these blog posts, but I wanted to let you all know what's going on now.

On Tuesday, October 13th, Bob took my mom to the emergency room after a difficult weekend because her usual medications had become ineffective in managing her pain. Her lower spine and legs have been aching lately, restricting her to a wheelchair, but the pain steadily grew in intensity until she was having fits of tears even though her dosage of pain alleviators was increased. In the hospital, she was given strong intravenous medications and a Fentanyl patch to relieve her agony. The pain is a result of the cancer's growth in her spinal cord which now means it is attacking her nerves. As devoted and thoughtful as always, Dr. Segota called me at work in North Carolina last week to explain the situation to me. Because of the blood-brain barrier, conventional chemotherapy cannot treat the cancer in my mother's brain and spinal cord. To address this cancer, she would have to undergo neurosurgery to have a hole cut in her skull where chemo could be administered directly to her brain and spine. However, my mother has become very weak and fragile over the past few months, and it is unlikely she could withstand such an aggressive treatment plan. She has said numerous times in the past that radical treatment of the metastases in her brain and spine was not a path she wanted to go down.

So Bob, Steve, Erin, Shannon, and I made the decision to bring her home and put her in hospice care. Steve, Dawn, and Emma picked up my husband Aaron and I on their way down from Washington, DC, last Friday morning so we could be in Florida with my mother. A hospital bed has been set up in the living room here where she can rest. She spends more time sleeping than awake, and she's not always lucid, but she was very happy to have all of her kids around her last weekend. Erin said when she told my mom Steve was coming to see her on Friday, her only question every twenty minutes that day was when Steve would be there. Of course Erin replied, "What am I? Chopped liver?" :)

The rest of my caravan (Steve, Dawn, Emma, and Aaron) had to return home on Monday, but my work has been wonderfully understanding, and I am able to be here with my mom until Saturday. I'm so thankful to have this week with her. We've been watching home videos, playing her favorite Christmas CDs, and looking through old pictures. As I said, she spends most of her time sleeping, and she is not very responsive, but when she does give you a reaction, it's usually a smile or a laugh, which is characteristic of who she's always been. But she has said more than once that she's ready to go Home. And thankfully, we've had almost two years to prepare to let her go.

A friend that my mom has always held dear to her heart, Patsy Harlow, stopped by the other day to visit. She told us my mom probably doesn't realize the impact she had on her life, but she will always remember her, because my mom was the first person to invite Patsy's family over to dinner when they were new at our church. It's not a big thing, but I have heard this same sort of story about my mom over and over because that is exactly who my mom is. She is a welcomer and an acceptor. My mom probably holds some sort of record for the number of dinner parties she's hosted in her lifetime. She wanted everyone she met to know they had met a friend and they had a place they were welcomed and wanted. And if you've known her long enough, you know this is a characteristic that was magnified when she became a Christian almost thirty years ago. The realization that she was loved and accepted by a perfect God despite all her imperfections filled her with a gratitude that spilled out to everyone around her. She wanted to share her discovery of joy, and she did. We were often joined on Christmas or Easter by friends my mom had invited because she knew they might have otherwise spent those days alone. She even spent days and nights visiting acquaintances in their homes telling them about this loving God who could fill their lives with meaning and true happiness. She volunteered at Hope Pregnancy Center counseling girls who thought they had made unforgivable mistakes so that she could share with them the truth that there was nothing they could do to make God not want them.

That's another thing that's so special about my mom. She volunteered with those girls at the pregnancy center because she had been in their position, and she always uses her experiences of suffering to help and comfort others. Most people are floored when they hear of all the hardships my mom has overcome in her short life, especially if they've known her for a while before they learn about all she's been through. There is no challenge great enough to break my mother's spirit because God has blessed her with an eternal perspective - the attitude of Paul in Romans 8:18 when he wrote, "I consider that our present sufferings are not worth comparing with the Glory that will be revealed in us." She knows the first chapter of James which says, "Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance," and she lives by it. Every struggle she faces is another opportunity to grow in the perseverance of her faith and reach out to more people in similar situations that she may help with the good news of Jesus's love. When I was in middle school, my mom, sisters and I lived in a small apartment where I had to share a room with my mother. (Hardly an ideal situation for a teenager!) But I remember women calling our house in the middle of the night in tears because they had found out their husbands were being unfaithful or they were having marital problems they felt almost no one would understand. Most of the time, they had never even met my mother, but were given her number by someone who knew she could relate. Even though my mom was working from 8-5 every day and raising her kids alone, she would sit on the phone with these distressed women as long as it took for them to feel that they were not alone and that there was hope even in their terrible situation.

The powerful love of Jesus Christ is so real in my mother's life, it has become her own reason for loving. She loves because Christ loves her. And because the Lord's compassions are new every morning, so are my mother's. This blog is another facet of this unstoppable desire God has put in her. She will never stop finding ways to reach out and show the love and compassion and mercy that has been shown to her. Almost as soon as she learned of her diagnosis, my mom was thinking of ways she could help people know Christ and find hope through her latest struggle. Her reasons for starting this blog were twofold. The primary reason was so that everyone following it would read the good news of Jesus Christ, which is this: "For God so loved the world that He gave His one and only Son, that whoever believes in Him shall not perish but have eternal life." We humans are sinful beings, incapable of being good enough to spend eternity with a perfect God. In fact, we deserve nothing short of eternal death. But God loves us so much that He laid our sins upon His perfect son Jesus so that when Jesus died, He paid that death penalty for our sins. Jesus received what we deserved in our place, and after three days, He rose again from the dead, and is now with His Father in heaven waiting to greet all who believe in Him when they leave this earth. It's as simple as that. My mom's second purpose for the blog was to let her readers know that with Christ, there is always hope and joy even in times of struggle. When you know that God is good and He works for the good of those who love Him, you can appreciate the lows as much as the highs because they are all evidences of His love. Though we all face obstacles, God is faithful to send joy in the midst of every affliction, but you have to know Him to recognize these gifts. One of the most basic blessings God gives us is each other. My mom wanted people to read her entries and know that they're not alone. Sometimes that's all it takes to feel comforted.

Reverend Kalehoff came by today to visit with my mom and he read a passage of Scripture to her from 2 Corinthians that sums up what my mom's relationship with the Lord is all about. "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God." Even as my mom lays on her hospital bed in our living room, hooked up to an oxygen tank, with around-the-clock hospice care watching over her, she wants to be the one comforting others. She perks up with every guest that comes to see her and gives them a smile to let them know they're welcome and she's happy they've come. I know she wants them to feel better leaving than they did coming in, and I think she's been successful.

The question everyone is asking me is, "How long does she have left?" And the answer is that I haven't the faintest idea. Each day is different and she seems to do better or worse depending on the hour. The time she will enter eternal paradise was determined by God long ago and He will be faithful to carry out His perfect plan for her. I am just thankful I have this week to spend with my mother, my hero, while she is still here with us.

If you have the urge to come see her, please don't feel uncomfortable doing so. My mom loves to have company! Just call Bob before you come so he can be sure she gets a good amount of rest between visitors. Please continue your prayers for her peace and comfort, as well as prayers for the rest of us who are preparing to temporarily say goodbye until we meet her again in heaven. I'll try to keep you updated on my mom's condition as is necessary. I know she and my whole family join me in thanking you for your commitment to prayer and support for us.

God bless you all!

25 comments:

Anonymous said...

mackenzie you have a wonderful gift with your words you said everthing i know I couldnt put together but wanted to say. thank you, shannon

Unknown said...

MacKenzie you and your family are a true testament to the love of God. I feel so blessed that you are my daughters friend. Praying for you all without ceasing. Your words and your mother's have touched and encouraged so many.
Always in Christ,
Peggy Deegan (Danielle's Mom)

Kerry said...

I am praying for your entire family. Thank you for letting me know how I can pray. Love you all!

Kerry Carlson (Erin's friend)

Laura said...

I love you all and am praying for you!

Pam Farmer said...

Mackenzie, I have shared your blog with a few friends because it is such a testimony to the love and grace of God. What a witness your mom has been through this entire journey! Your family is blessed and privlidged to have each other and to have you to express their hearts so beautifully. I have been praying for all of you

Anonymous said...

Beautifully written message about a beautiful lady! I am praying for you all.
Amy Windsor (Erin's friend)

Unknown said...

MacKenzie, what a blessing to hear your faith and your mother's faith coming through your writing. What a wonderful testimony to our Lord and His amazing power, grace and love. I am praying for you all as you prepare to temporarily say good-bye. How sweet a reunion you will all have someday! In His love, Amy Byrne (Katie's mom)

Anonymous said...

I'm praying for all of you. Love, Katy Peterson (Erin's friend)

Anonymous said...

I am praying for you and your entire family. Daniel Roberts (friend of Erin)

Maureen Hogan Allen said...

I went to St. Clement's with Erin and can so clearly remember what a wonderful mother Jayne is. She seemed so glamorous to me with her long blonde hair! She always had a smile for every kid and knew our names. It seems like she was room mother every year, made the best cupcakes and cookies and was always working one booth or another at the Festival. Then I remember when the little girls were born we were all excited . . . none of us had gotten a new baby in our house in a long time.

One funny thing -- Erin always had a pretty bow in her beautifully done hair that I now realize Jayne must have made as she was always so creative. When my daughters were born I had a friend teach me how to make bows for their hair. My oldest is quite the tomboy and really never kept them in her hair, but my 3 year old Caroline is NEVER without one and informs me if one doesn't match her outfit. It's such a little thing, but it's something that Jayne definitely influenced in my life.

Jayne, thank you for always making me feel as if you weren't just Erin's mother, but a part of her classmates' lives. I will think of you every time I put a bow in my daughter's hair.

You are all in my thoughts.

"Unable are the loved to die for love is immortality." -- Emily Dickinson

Anonymous said...

Your Jayne's Journey has been very inspirational for me. I admire your courage and fortitude throuout this battle. Your writings have given me a greater appreciation for my faith and a stronger love of my family and friends. It was our good luck and blessing for over 30 years to have lived next door at Bass Lake. Our prayers and thoughts are with you and your family.
Tim and Sue O'Brien family

Anne said...

Kenz,
You, your mom, and your family are loved and prayed for often. Thank you for sharing this journey of faith and perseverance- what an incredible testimony of God's love it has been.
Much love and continued prayers,
Anne

Anonymous said...

Jayne,
Hello! My name is Noreen and I am a friend of your son Steve. We worked together on USS San Antonio. Though I have never met you, Bob, or your daughters, I sure feel like I know you all. If Steve wasn’t talking about Emma and Dawn, he was talking about you, Erin, Shannon, or Mackenzie. There’s something about being stuck on a ship for days, weeks, and sometimes months at a time that makes people feel comfortable sharing fond memories of those who cannot be out to sea with us.
I wasn’t quite sure what to write on your blog because, despite hearing so much about you, I never actually had the opportunity to meet you. But, then it occurred to me, just the other day, my sister told me the most flattering compliment she ever received was when someone told her that her son was a great kid.
There probably isn’t much about Steve I can tell you that you don’t already know. And I apologize I cannot tell you he is a great kid because he has me by at least ten years, ☺ but I can tell you that you sure raised him to become a very good man.
There are so many times when Steve went above and beyond for the good of his shipmates and friends.
On the San Antonio, Steve (or “Curran” as we called him) had his hands in every pot – in a good way! He practically ran our department by himself, so him leaving us during deployment was a huge loss. After hours, if he wasn’t still doing work for medical, he was scooping ice cream for the first class petty officer association, making announcements on the overhead speaker to increase morale during cleaning time, helping junior sailors prepare for sailor of the quarter boards or warfare pin boards, talking with someone who had a bad day, building houses in New Orleans after Katrina, or advising young sailors on what to do with their lives. When he made chief, the whole ship was proud and cheered him on because everyone knew the promotion was well deserved. Steve was a great leader long before the Navy gave him his anchors.
Personally, he has helped me in many ways. He has always been there as this older, wiser, rational person I can turn to for advice. When I was at my lowest emotionally, he had encouraging words and was willing to help in any way. When I shut myself off from others, he reached out. And, when I had questions about religion and salvation, he shared his experiences and his knowledge. He even put me in contact with one of his local friends who offered to take me to church with her. He has always been a selfless and wonderful friend to me.
What has always impressed me most about Steve though is the way he talks about Dawn and Emma. I have never heard a man openly speak so lovingly about his wife and child. I have to believe he learned how to love like that from someone, and after hearing him talk about growing up, I have to believe that he learned from you.
I have enjoyed reading your blog Jayne. Your spirit and loving nature are evident in your beautiful writings. You and your family are in my thoughts and prayers. God Bless, Noreen

Anonymous said...

As much as you believe that God has helped you along this journey, I believe that your spirit and willingness to share with others, as well as the wonderful children you raised has given you the ability to touch many, many more lives that you can ever imagine.

I am a friend of Steve and Erin's (she's my little sister, I'll let her explain) from FLHS. After reading your blog I now understand Steve's Bucky the Badger sweatshirt, and Erin's beautiful blonde hair and constant smile.

As my family has also been touched by a similar journey I know that no one gets through it alone. And many are on the journey with you.

Charlotte (friend of Erin and Steve)

p.s. i copied one of your postings about granddaughters 2/8/9, to a friend and she feels the same way. She would like you to know she is going to copy it, to give to her 15 month old Abigail.

Katie said...

Hi, Mackenzie:

I saw Erin's post on FB to this page and just read some of Aunt Jayne's blog, and your most recent post. I haven't seen you all in many years but I just wanted to say hello and send my best. It sounds like you've managed to enjoy each other and life despite the struggles of the past few years. It is so apparent in your stories.

Aunt Jayne was always very nice to me. Please let her know that she's in my thoughts, as are you, Shannon, Erin, Steve and your extended family.

My very best,
Katie Zabransky

Anonymous said...

I've read Jayne's Journey 3 times in two days, along with other blogs, each time finding new inspriration. Inspriration on wanting and leading a more faithfilled life for myself and family. My thoughts, prayers and love are with you all now and always.

Since the day Annabelle began talking, i've heard stories of Grandma Jayne AKA Gram. She loves you with her whole being and at such a young age understands the pain you struggle through everyday, and has expressed to me on multiple occassions "I wish Gram didn't hurt so much" along with "She's going to heaven to live with Jesus and Tichi" and the day she told me, "Gram will always be in my heart". I looked in the rear view mirror at this beautiful 4 year old with so much understanding of God's love, and couldn't fight the tears. "what's wrong Bekah?" she asked "why are you crying" "These are happy tears, Annabelly happy tears" apparently needing no explanation, she just smiled and continued talking about her sleepover at Grams. Through Annabelle and reading your journey of faith i've come to learn what an amazing woman you truly are.

All my love,

Rebekah (Annabelles friend)

Miss Curran said...

Mackenzie-
As I read this the second time, I cried, yet again!!

I wanted to share with you all a sweet story to show you how my mom's spirit is still intact. Sunday evening, some friends of my mom's, who have been her friends since college, came by to see her. After chatting for almost a half an hour, my mom (while laying in a hospital bed, hooked up to oxygen) apologized for her rudeness and offered to make them snacks. Needless to say everyone got a chuckle out of that one. They thanked her and refused!! p.s. Tom and Sherry, we love you guys!

Everyone please continue to send us your encouraging words. We need them! Thank you.

Erin

Enrollment Leader said...

Jayne,

I am not sure you ever knew what a comfort it was for me to spend so much time with my friend and your son Steve at your home when we were in high school together. I never had an opportunity to thank you for that and for the inspiration your entire family showed me that life could be different than the life I lived at home. You and your family gave me a close up glimpse at a different world and that gave me hope. During those years I was getting away from my own family troubles and truly believe god put some wonderful people in my path to help me through that time. I have so many memories of your kindness, warmth and beauty, the festive house that was always decorated for every single holiday large and small, of the pigs in Steves room that you collected for him, and of your incredible cooking. What was that caserole you used to make? Dan somebody's caserole? mmmm. good. See I remember that after all these years.

My faith in Jesus Christ has guided me through my life and has never abandoned me, even when I may have taken too much on and left him behind. I know there is nothing that will stop his love. I pray for his warm embrace for you and your entire family.

with love,

Dominick Miciotta

Sharon said...

I remember meeting your mom thru Erin years ago when she was becoming a single mom, losing every material possession, raising young kids, finding work to provide and finding ways to keep you all in the same school. As you know the details of her circumstances were so grime, yet your mom was this petite beautiful woman who took it all in stride. To me, she has been the picture beauty, grace under pressure, feminine strength, perseverance and humility for years! Her friend was right, your mom has no idea the impact the she has had on so many as she allowed God to shine through her. I thank her for the example she has set for me and so many other women on what being a woman of God and Disciple of Christ looks like!! Please tell her I love her and that she and your whole family are being covered in prayers by the many people she impacted over the years!!!

Sandy Curran said...

Thanks for all the encouraging words. Thanks for helping to keep us focused on the important things in life, which aren't things at all, but relationships. Thanks for being so willing to be vulnerable and transparent with us on your journey with cancer, so we can see the beauty God creates in the midst of pain. I am looking forward to seeing you in heaven when I arrive so I can catch up on your heavenly blogs and hear about your time there, in perfect health and without pain. O, if only the internet could make the connection to heaven, we could read of the wonders and of you rejoicing as soon as you arrive! Love, Sandy Curran (your wanna-be relative)

Anonymous said...

Bob,
It is no wonder that so many persons have commented on the latest blog. Mackenzie has done a great job of summarizing Jayne's life and why she is so special. As you know, her continual upbeat positive attitude is admired my all. I have never heard of anyone that did not love Jayne for this. Her ability to be a great witness for the love of God is outstanding and many were comforted.
We first knew Jayne when her life was falling apart and we tried to help. But we were constantly amazed at how she held herself together when anyone else would have fallen to pieces. When you came along, you were truly icing on the cake and certainly what she needed. She was as blessed to have you as you were to be a part of her life. The new family that you have now is a great one and we look for many more years together. We love you all. Norma and Bryan

Miss Curran said...

We are so thankful for all of our family, who have been so supportive and encouraging through all of this, here's a message from our cousin Kerrie-

Hello Erin
I've been thinking of you, Aunt Jayne, Bob, Mackenzie, Shannon and Steve daily. I wish there was something I could say to make things easier.

When I think of you and your family I remember the weekends at the beach. I remember bubble gum ice cream on Ft. Lauderdale beach. Thanksgivings and Easters at the wilton manors house, then the home off bayview drive. As we progressed through the teenage years and college years everyone was busy and moving in different directions.

Then came Rebecca... Aunt Jayne hosted a baby shower for me, and when Rebecca was born we spent her first christmas eve at the house off bayview drive. Aunt Jayne loaned me her baby craddle when Becca was born. She was the first to tie Becca's hair up in a ribbon, Becca was only 3 months old. Aunt Jayne also made the great recommendation to use Drs. Seymore and Smouse for Rebecca's pediatritions. When Rebecca and Stephanie were young we spent more time together. Usually it was at my moms house and Aunt Jayne would come over so my girls could see "shannon and the sisters" (that was how Rebecca would refer to Shannon and Mackenzie). There were several times when I would go to Ft. Lauderdale and Aunt Jayne would make the trip over to moms so we could all visit.

My heart aches for you, Aunt Jayne, Bob, Mackenzie, Shanon, and Steve.
I wish peace and comfort for all of you...I will keep all of you in my thoughts and prayers.
love,
Kerrie

-Thank you all for being there for us!! -Erin-

Anonymous said...

Girls, I just came across this blog this morning. What an amazing testimony for all of us to read and follow. Reading about the strength in your family is inspiring, yet not suprising. I am praying for you, Jayne, and I have just been so proud watching your girls grow up from the little girls I used to babysit. Even thinking of the woman Shannon has grown into makes me smile, and I was so happy to see the pictures of Makcenzie's wedding. So many blessings amidst all of this struggle...the picture of Jayne holding that beautiful baby says it all...God never forsakes us! I will be following the blog and praying for you all. Love, Missy

Anonymous said...

37It is 2 years later and I read this monthly for inspiration and memories.

Anonymous said...

You (Jayne) would want to know (and probably do) that your family is thriving. Growing and loving. They miss you dearly, We all do.