Tuesday, December 9, 2008

My One Year Anniversary!

I know it's been a few weeks, but I promise I haven't kept you waiting much longer than I myself had to wait! At the end of last week Dr. Segota walked into the examination room where Bob, Mackenzie, and I waited for my appointment and said, "You will kill me when I tell you this." Luckily for her, she was wrong. When she told me that the lab for the clinical study had once again come up with inconclusive results about whether I qualified for the study, instead of killing her, I just stared at the wall while I tried to come up with a reaction. The past few weeks I had thought hundreds of times about what I would feel and do if the news was that I didn't qualify for the study. I thought about what my response would be if I did qualify. I never decided what my reaction would be if I once again received no answer! Dr. Segota understood my silence and told me she was disappointed and confused as well. After the last biopsy, we sent them the largest sample we could of my most densely cancerous tissue. So it seems that if the lab for the clinical trial cannot determine if I make the cut now, they'll never be able to know. Instead of waiting 2 to 3 more weeks hoping for different results, we've decided to go the chemo route with a drug called Alimta.

So here I sit back in my home away from home at the Holy Cross infusion ward catching up with the oncology nurses I haven't seen in a few months. It's hard to believe it's been a year since this enterprise began. December 13, 2007, was my general physical with Dr. Groene where I mentioned a little shortness of breath. Thankfully, my off-hand remark prompted her to order a chest x-ray which exposed my lung cancer, beginning one of the most monumental adventures of my life. And I praise God that I have yet to see an end in sight.

Day to day living has certainly become more wearying. I am far more fatigued, have little appetite, and simple tasks like writing, painting, or walking up the stairs have become irritatingly difficult. But God sends me all the blessings I need to keep my spirits up and my focus on Him. My sister Jody came back to play with me a couple weeks ago and we had a great time lunching on the town, telling family stories, and once or twice staying in our pajamas all day long! Jody helps to take care of a family of girls who recently lost their mother where she lives in Kentucky. So while she was here visiting, we bought a Christmas doll at Target that coos and sings and sucks her thumb for one of Jody's girls. Separate outfits for the doll were hung up next to it and we picked a cute one out so it would have two clothing options. Later in the afternoon, we stopped at a children's shop so I could find a treasure or two for my grandbabies, and we discovered that Jody's new doll was a perfect fit for the premature infant clothing. Not only were the premie outfits adorable, they were cheaper than the actual doll clothes! Now that Christmas doll has a bone fide wardrobe! And the original Target outfit went right back to the store! Having Jody around for a week of fun did a great deal to buoy me out of a heavyhearted funk I had been in while waiting for results from the clinical study. She has a talent for creating smiles.

If you've known me for some time, you know that my life has generally been characterized by a distinct "get-up-and-go" attitude. I enjoy being busy and active and usually have a myriad of projects going on at any given time. Especially as a mother of four, sitting around idly grew to feel eerily uncomfortable. But this time of resting in my life has given me a powerful understanding of my true significance. Even as I make the shift from the "get-up-and-go" gal to the woman shuffling from the bed to the couch, I have lost none of myself. My identity is found in Christ, in that in His astounding grace and mercy, He chose to save me and give me abundant eternal life, regardless of what my earthly restrictions may be. Galatians 2:20 says, "I have been crucified with Christ and I no longer live, but Christ lives in me. The life I live in the body, I live by faith in the Son of God, who loved me and gave Himself for me." I am continuing to learn more and more of the vast expanse of Christ's love for His children. Ephesians 3:16-19 contains a prayer of the apostle Paul for the church, "I pray that out of His glorious riches He may strengthen you with power through His Spirit in your inner being, so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God." Christ's love for me is certainly beyond my understanding, but I am thankful for the enormous purpose and hope it gives me.

I pray that God is also showing you the magnitude of His love and the impact He can make in your life. He is truly the "Father of all compassion."

2 comments:

Anonymous said...

Dear Jayne,
Keeping your spirit up is an inspiration to everyone. Each step you take we pray gets you closer to your goal. Holidays make us nostalgic and all I can say is we have shared many a good laugh and I know with Jody she kept you laughing!!
Love,
Pat & Nick
xo's

Anonymous said...

HI JAYNE

WHAT A WONDERFUL MESSAGE OF HOPE AND LOVE YOU ARE RELAYING TO ALL OF US. YOUR FAITH IS FAR BEYOND WHAT MOST OF US CAN IMAGINE AND YOU RELAY IT IN SUCH AN UPLIFTING WAY. IT SOUNDS LIKE YOU HAD A WONDERFUL WITH JODY. WE SAW ERIN IN CHURCH ON SUNDAY BUT DIDN'T GET TO STOP AND TALK TO HER SO I WAS SO GLAD YOU POSTED YOUR UPDATE. WE SPENT THE SUMMER IN N.C., AND HAVE BEEN SPENDING TIME IN ATLANTA WITH KRISTIN AND GIL, WE WE'RE JUST GETTING BACK AND GETTING SETTLED IN. I WAS AT HOLY CROSS TODAY SEEING DR. SIEGEL AND THOUGHT ABOUT YOU. IF YOU WILL LET ME KNOW WHEN YOU'RE DOING YOUR CHEMO, I WILL COME OVER AND KEEP YOU COMPANY.

WE THINK ABOUT YOU AND PRAY FOR YOU OFTEN. JUST KNOW YOU ARE SUCH AN INSPIRATION TO ME AS YOU ARE GOING THROUGH THESE CANCER TREATMENTS. WE CAN DO ALL THINGS THROUGH CHRIST WHO STRENTHENS US.

WE LOVE YOU
FRANK AND JOY