Wednesday, October 8, 2008

The results are in.

I know many of you have been diligently checking in for answers about my myriad of tests last week, and I am thankful for your concern. I needed some time to get used to the news myself before I was ready to pass it on, so thank you also for your patience. In my appointment last Tuesday, Dr. Segota was teary-eyed as she told my family that my condition has become significantly worse. The MRI of my spine showed free-floating cancer cells, meaning there is cancer in my spinal fluid, which was evidence that cancer would also be in my brain. Cancer appears in the spinal fluid through a process called drop down metastasis which is basically just what it sounds like. The cancer which originated in my lungs infected my brain and its surrounding cerebral fluid, which then dropped down into my spinal fluid, causing a formidable spread of malignancy throughout my body. The MRI of my brain confirmed what Dr. Segota already knew by showing 8 cancerous lesions in my brain. While the cancer in my lungs has remained stable, this surge in metastasis means the disease is strengthening and growing beyond the rate at which it can be treated. Surgery is often performed to remove brain cancer in cases of up to 4 or 5 lesions, but since my brain has rapidly developed 8 lesions, the only option is daily radiation of my entire brain. This will kill the areas of cancer growth and sterilize the rest of my brain so that baby cancer cells cannot develop. Dr. Segota said that in the future I will also likely receive chemo directly into my spine as opposed to the usual systemic chemo in order to impede the cancer growth in my spinal fluid. Of course receiving all of this information in a span of a few minutes set my head spinning as a flood of thoughts, questions, and emotions washed over me. Dr. Segota had the unenviable responsibility of having to tell us the bottom line of all this information is that, statistically speaking, it shortens the amount of time I have left with my loved ones on earth. You know that my hope has been to greet Shannon's new baby in January, which Dr. Segota sorrowfully said will be unlikely considering the growth of my cancer. But she added that most people with stage 4 lung cancer are no longer alive at this point. I have beaten the odds already, and God may allow me to do it again. We will have to wait and trust in the wisdom of His sovereignty.

Wednesday I had my first appointment with Dr. Irina Grosman, my oncologist for radiation. She gave me a thorough examination and sympathetically rubbed my arm as she further explained my situation and the treatment I will undergo. She seems as sweet and capable as Dr. Segota, and I feel fortunate that I love both of my doctors.

So Friday I got my introduction to radiation therapy. As you can imagine, in the process of treating my entire brain, it is imperative that sensitive areas like my eyes are not unnecessarily affected. The way this is avoided is by molding a personalized, incredibly tight-fitting mask that is placed over my neck and face as I lay on the metal bed for radiation. The mask is then bolted into the bed so that my head cannot move and they can ensure that I am in exactly the same position every time I receive treatment so that radiation never affects areas of my head and neck that are not meant to be treated. The mask is porous so breathing is easy, but it is certainly strange to hear footsteps around my bed and not be able to turn my head to see who is in the room with me. Thankfully, I only wear the mask for about 5 minutes per day, which is how long it takes to receive my radiation. During the process, I don't feel a thing, although as soon as they turn the great machine on, I can distinguish a sort of burning odor. I actually know what it smells like to fry my brains!

Such a drastic advancement in my disease was certainly not the report I was hoping to hear from Dr. Segota, and as I tried to focus on her words through a tempest of thoughts, and as I saw Mackenzie diligently recording scribblings in her notebook like, "disease significantly worsening," "probable loss of cognitive abilities," and "daily radiation" - I felt like I had been sideswiped. I was run off the road and flipped upside down by a truck I never saw coming. I thought I knew the path I was on. My cancer was stable and I was on a break from chemo until the day we would see some growth in my tumors. Then we would resume chemo. I know chemo. I'm comfortable with chemo. Radiation was never a possibility. I didn't want to meet new nurses and new doctors and face this new adversary of brain cancer. I wanted to cry. And so I did. I cried and I slept and I stayed in my pajamas for five days. And my family let me.

Then Monday morning I awoke renewed. My pastor Dr. Kennedy used to always respond to the conversational, "How are you?" with the same profound answer: "Far better than I deserve." And that's how I felt. Lung cancer, bone cancer, brain cancer - whatever afflicts me - I am incomprehensibly loved by my Lord and Savior Jesus Christ, and I am blessed. I think it's OK to give in to our tears for a time, and I am not afraid to let myself do it, because I know each time I've been sideswiped in life, the Lord comes alongside me and pulls me out of the muck. I realized I had Monday to take Dawn and energetic Emma to lunch. I had Tuesday to make Halloween cookies with Shannon, Annabelle, and Addison. And I had Wednesday to paint with Erin. I have always taken the most pleasure in the day-to-day business of living, and God is still giving me days filled with my little joys.

I also have a lot to be thankful for in the ways God has chosen to answer many of your prayers. My neck pain that has plagued me for months has gone from a 10 to a 1 on a scale of pain. We never found the cause of the pain, but it was the reason Dr. Segota ordered MRIs of my spine which revealed the growth in my cancer. If it wasn't for the neck pain, we would not have known about the cancer in my brain and spinal fluid until after I was suffering the painful effects of this metastasis. When the last of my MRIs was completed, the constant pain in my neck vanished. Amazing the way God works, isn't it?

I am also thankful that I have not yet experienced the severe headaches and backaches that typically accompany cancer in the brain and spine. God has protected me from these symptoms thus far, and I'm asking you to pray that He will continue to do so. From what my nurses tell me, it's pretty incredible that I am practically asymptomatic for the amount of cancer that has filled my body.

So although the news about my cancer is different than what I had hoped to hear, I am consoled by the knowledge that God is always in control and His purposes are always for the good of those who love Him. I am confident in His promises and in the truth that I am still living "far better than I deserve."

18 comments:

Anonymous said...

I'm praying for you.
Sincerely, Katy, Erin's friend.

five in six said...

I am sitting here with tears streaming down my face and yet so encouranged by your strength as you face this new challenge. You are an inspiration to me with your faith. Please know that I, along with my family, am praying for you.
In His arms,
Paula VandenOever
Erin's friend...and yours.

Anonymous said...

Words elude me as I sense the mix of sadness and joy you share in your journal. You and every member of your family are in my prayers. May God give you the peace that surpasses all understanding and use you mightily as you continue to touch all of us with your incredible faith and testimony of living each day in service to Him. Love, Sharon Higerd

Anonymous said...

you have been in our prayers since day one and we will continue to lift you up and the rest of the family - you are a strong woman and GOD will give you strength day by day! Blessings and love
Lisa Simoneau Stapleton

Anonymous said...

You are an incredible woman in all ways. Your positive attitude in all difficulties you have enc ountered in the past have been a great testimony to your strong faith. You do not cease to amaze us. We will continue to pray for you and your family. We pray that your family and everyone reading this blog will see what truth faith is. We love you Jayne, Bryan and Norma

Unknown said...

Jayne, I have been praying for you and your family (and Mackenzie in particular) and will continue to do so. God bless!

Anonymous said...

Jayne
What an amazing testimony of God's love in your heart. It was hard to hold back the tears on Sunday when Mackenzie and Hannah were singing. We send our love and daily prayers for the Lord to surround and sustain each of you.
Linda and Mike Newsom

Anonymous said...

Dear Jayne,
Once again a challange you have faced head on and accepted what cannot be changed. May we all find the courage and strength that you are constantly being faced with during this battle. Your faith is inspirational to all that know you and read your words. Please know that you are forever in our thoughts and prayers.
Love,
Pat & Nick

happynva said...

Im praying for you! :)

Elsa
(Neighbor of Dawn and Steve)

Anonymous said...

You inspire me to make the most of every day! Your strength and faith are amazing.
Praying for you,
Nicole

Anonymous said...

Jayne

It is hard to see you going through the same things mom did less than a year ago. It is also hard to know Gods plan but he will never leave you no matter what! Faith is what will get you through this difficult time and it is faith that will help your family get through the challenges ahead. Remember your family in Wisconsin loves you and I will pray that God continues to give you strength and the power of his healing hand.

God Bless.

Rob

Arianne said...

There are no words...You are incredible and so is your family. You truly have shaken God's kingdom and brought a divine presence and joy in the midst of suffering to this earth. I praise Jesus for you and Mackenzie! I'm praying for you everyday!
-Arianne Gabrielle

Ted Stephens III said...

as someone above said, there are no words, jayne. its been a while since i've checked into your blog...but u have continued to be in my thoughts. your beautiful family and friends are always with you...and i'm sending my love and strength, each and every day. all of gods love to you...
t

Unknown said...

I'm thinking of you all and praying for you, and I'll see you guys in a few weeks!

Anonymous said...

Jayne,

Bless you dear friend for sharing your life. I know others who are suffering listening in. Your honesty is so helpful as you face one of life's hated enemies. I know how much God loves you to allow you this journey. He has the victory!!
For friends and family we are strengthened because of your witness to His presence.

Much love and many prayers.

Priscilla

Anonymous said...

Dear Jayne,
Every time I read your words, I feel Gods presence. He is holding you in his loving arms. I have never felt this as much as I do now. Your Grace, Peace and Love come out in every word. God has truly blessed us all by your life and I will treasure your words of Faith and Hope. I pray for you and your family. I have a friend who went through radiation and chemo together. I went to Texas with her when she went for her initial treatment and saw her suit of armor. There are a lot of things to be aware of during treatment, I am sure you must have someone to talk to, but if you do not, please let me know. She is cancerfree today. Love Pat Cone

Anonymous said...

Hey Jayne!
Just saying hi and letting you know that I am thinking about you. :)
Love You!

-Laura

Anonymous said...

I am thinking about and praying for you and Kenz, always. Love, Paige